Eat. Sleep. Wheeze. Repeat

I start mepolizumab on July 13th. I'm kinda excited, kinda nervous. I really hope this is the first step to getting some of my life back. Or at least to getting the devil that is steroids. I've got a bit over excited and started job hunting to see what's about. Probably a bit premature but I am hopefully that by new year it will be happening or close to happening. Even if it's just starts at a few hours a week and builds up. I don't care. I just need to be reliable and prove I am reliable. Anyway like I said that's getting a head of myself. I'm just grateful I get a chance to try

I hope everyone used their chance to vote. Today's was a tricky one for me. I realised how vulnerable I feel.  I rely on the NHS and I rely on it being free. I receive ESA currently whilst I'm not allowed to work. I rely on student loans to fund me studying for when I am allowed back to work. My children are both in the education system. Yup I am a giant drain on the system (not intentionally I promise) The thought of having to pay for my medical treatment, whilst I see why that might be seen as a good solution to some of the countries problems, leaves my blood run cold. It doesn't take a genius to figure out I'm not exactly rolling in it right now. Will it be that I genuinely might not be able to afford to keep myself alive? Or I will but my husband and I will be in even more debt than we are now. Will our children have to miss out more than they already do so mum can breathe? I've had to avoid picking up my prescriptions for a couple of days before because I ...

So much has happened since my last update.  I had been getting progressively worse breathing wise so on the 11th of may I went to my gps , I knew what they were going to say but you never know I might have been lucky. He didn't even check me over he just rung my local hospital and sent me straight there, however the plus side to this was avoiding a&e and going straight to AAU.  After the general poking and prodding they whisked me into a bay whacked in a cannula and bleeped the respiratory team who came down actually quite fast, and it was decided I was metabolising my tablet medication to quickly so it was ineffective.  I was told only to walk to the toilet no where else (like I had the energy) and I was started on iv steroids and Iv aminophyline. Iv aminophyline is a 24 hour drip so I knew I was in for a couple of days.  I was to tired to be that bothered to be completely honest. I always get sad as i hate leaving the munchkins but I knew I needed to be th...